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Showing posts with the label Becky Strong

The Importance and Value for Physicians and Patients in Engagement with Patient Foundations

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  By Dr. Brittney Schultz Becky Strong is a patient with pemphigus vulgaris. For Becky, her journey spanned 17 months, seven physician specialists, multiple encounters with her dentist, and several rounds of incorrect treatments and procedures before correctly being diagnosed with pemphigus vulgaris. She’s a registered nurse living in Michigan with her husband Tim and two children. Currently, Becky is the Outreach Director for the International Pemphigus & Pemphigoid Foundation (IPPF), a patient support organization. Becky is responsible for education and awareness related to medical and dental professionals, dental students, and patients at the IPPF. She also spends time advocating at the federal level for patients with rare diseases. Brittney Schultz is a dermatologist at the University of Minnesota and cares for patients with autoimmune blistering diseases. She has been engaged in the International Pemphigus and Pemphigoid Foundation for several years. While in residency, ...

Real Life Tips/Tricks for Living with Pemphigus and Other Blistering Diseases: An Interview with Becky Strong

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By Dr. Brittney Schultz Becky Strong is a patient with pemphigus vulgaris. For Becky, her journey included 17 months, 7 physician specialists, multiple encounters with her dentist, and several rounds of incorrect treatments and procedures before correctly being diagnosed with pemphigus vulgaris. She’s a registered nurse living in Michigan with her husband Tim and 2 children. Currently, Becky is the Outreach Director for the International Pemphigus & Pemphigoid Foundation, an organization that supports patients with these two rare autoimmune diseases. Becky is responsible for medical and dental professional, dental student, and patient education at the IPPF. She also spends time advocating at the federal level for patients with rare diseases. I first met Becky at an American Academy of Dermatology meeting where she shared her experience as a patient with pemphigus. She is the unique blend of patient and advocate and she is one of the reasons I chose to focus on autoimmune blistering...